Do you experience painsomnia?
Do you live with chronic pain & insomnia (painsomnia)? How do you manage your day-to-day life while dealing with painsomnia? What coping strategies, if any, have you found effective?
Artvigil 150mg isn't usually used to help people sleep. Instead, it's known to wake people up and keep them from getting sleepy during the day. If you're having trouble sleeping, you should talk to a doctor or nurse right away to find out what other treatments are available that will work for your needs and get to the root of your sleep problems.
Good advice,
! The member who recommended that was a spammer and I have blocked the account. Thanks for chiming in when you did. We appreciate it. - Lori (Team Member)
I have a lot of pain because of dystonia. I have Parkinson's and the dystonia is part of that. I try to take something before I go to bed to relieve the pain a little but often it doesn't last the whole night. When I don't get enough sleep the Parkinson's and the Estonia is much worse. I do better if I can have consistency throughout the week but that is almost impossible.
Deane,
I put in your question towards the database from Andrew Huberman's discord. Essentially a
collection of his thoughts. I found it insightful. Hope you do too. Based on Huberman's public conversation I'm really sorry to hear that you're dealing with pain caused by dystonia, which I know can make your Parkinson's disease even more challenging. It's great that you're proactive in finding ways to manage it! Let's dive into some ideas.First off, it's crucial to strike a balance with medications or supplements that regulate your dopamine levels. Collaborating closely with your doctor will be key. Consistency in your sleep schedule and keeping anxiety at bay before hitting the hay might help you tolerate the pain better at night. Ah, and don't forget about minimizing exposure to bright lights during evening hours – it can positively impact your mood, mental health, and perhaps even pain management.
Now, have you considered incorporating non-sleep deep rest practices into your routine? Things like meditation, yoga nidra, or self-hypnosis might help you relax and bring relief to those bothersome symptoms. To make it easier for you, there are even resources and apps like Reveri that offer guided scripts tailored to sleep, focus, and managing chronic pain.
Always remember to share any changes or ideas you come across with your healthcare provider. They're the best person to guide you through this journey. Stay positive and hopeful, my friend! You've got this.
I have Parkinson's and I have been having a lot of pain for some time now. I have a lot of dystonia which causes a lot of pain. I try to take something something before I go to bed but often it doesn't last through the night and I can't sleep for the pain.
Hi
, the pain of dystonia can be so difficult and even more so when your sleep doesn't last through the night. It also sounds like you've been dealing with this for awhile. I wonder what you would think of this article by someone dealing with painsomnia... the writer shares "I am simply in too much pain to sleep. I cannot get comfortable. Sometimes, I fall asleep reasonably fine, but the pain wakes me throughout the night. " - full article here: https://insomnia.sleep-disorders.net/?p=3200 . For you or anyone following the thread, our sister site on Parkinson's has a good article on dystonia and pain: https://parkinsonsdisease.net/?p=9630 .
Thank you for sharing, I am sure it makes someone else feel they are not the only one experiencing painsomnia, and I hope for some easier nights for you soon. - Liz (Team Member)
Lori
I have MS and I am in a lot of pain...known since 2015....have done physical therapy it helps a little and pain meds that don't helpHi
. MS pain can be really hard to address, especially since there are so many different types of pain affiliated with it. My father had MS and I moderated in our sister community for people with MS, MultipleSclerosis.net, for a long time. Here is an article from one of our MS advocates about sleep and MS pain that might interest you: https://multiplesclerosis.net/living-with-ms/three-tips-pain-sleep. If you enter "pain" or pain relief" into the search box at the top left of the MS page, you will find a slew of articles with some ideas that might help. I hope you can get some relief and some better quality sleep soon. Gentle hugs. - Lori (Team Member)
