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Allison Echols
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Do you live with chronic pain & insomnia (painsomnia)? How do you manage your day-to-day life while dealing with painsomnia? What coping strategies, if any, have you found effective?
Annzie Member
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Yes, painsomnia! I love the new word!! I've never slept well. Even as a baby my mom couldn't get me to sleep. As a toddler, I was an escape artist and she never knew where she'd find me in the morning. My earliest memory is try to get out the screen door to go play on the swing set. I remember taking a broom and trying to push up the hook to get out. Thank God I wasn't THAT talented of an escape artist!
I've always wondered if my neck was the reason I couldn't sleep. All of mom's kids were born breach, except one that was sideways. She said after that birth she swore no more kids. She wouldn't say which one, but I always thought it was me because I was at the end of the line, and my neck and spine are in horrible condition, and have caused pain my entire life.
So how do I deal with my painsomnia? I do the standard tricks. Warm bath before bed. Heat on my neck and back. Quiet music that I have pulled from my favorite classical pieces, but only the soft parts. My approach on music is different. I play pieces I have memorized so that it doesn't distract me, but rather becomes background noise. Then I pray. I've memorized several psalms and go through them, followed by people I know need prayers....usually because they are in pain too. Somewhere along the long list, I fade away. If I don't, then I get up and walk the house slowly, trying to ascertain if something is bothering me mentally, or us it just the pain? If it's, pain, then I use my pain cream, or put on my TENS unit for 20 minutes, or take a pill as a last resort. I hate pain pills because they make you constipated, but some nights it becomes necessary.
Best luck to all.
Lori.Foster Community Admin
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CommunityMember19ad03 Member
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My mom has been having a lot more painsomnia than I have. She is scheduled for hip surgery next month. I hope that helps, but it might get worse before it gets better, and she is not confident that fixing the hip will make a difference for her knee and sciatica, or other issues that may need to be addressed separately. She might still need surgery for a knee and a shoulder, and there are probably other things.
For me it is mostly my hands lately. They usually don't exactly hurt. It's more of an intense tingling. Sometimes to morphs into a burning sensation. I used to say that feel numb, and sometimes they are kind if numb, but it's not like there's no feeling usually. It's more like I don't feel what is really there because the tingling is so strong. It's like my hand are full of very fizzy soda pop, or sometimes almost boiling water. I need to.shirf positions to reduce the neuropathy in my hands. Sometimes a wrist hurts a little, and I am waiting for approval and scheduling for carpal tunnel surgery. However, I'm not sure that's the only cause. I also have spinal stenosis, and I had pain in my neck, back and shoulders before the hands got bad. Sciatica was bad more than a year ago, but that hasn't been as bad lately. Inflammation seems to aggravate all kinds of pain, but I couldn't get my doctor to listen when I tried to talk about that.
kjorgenson Member
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Tracy Hannigan, MOstMed, ACE-HC Member
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johnny12322 Member
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Artvigil 150mg isn't usually used to help people sleep. Instead, it's known to wake people up and keep them from getting sleepy during the day. If you're having trouble sleeping, you should talk to a doctor or nurse right away to find out what other treatments are available that will work for your needs and get to the root of your sleep problems.
Lori.Foster Community Admin
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Good advice,
Annzie Member
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I'm sorry your doctor doesn't listen to you! You need to try and find a compassionate one instead. Unfortunately for me, my doctor retired in 2019 and I'm still trying to replace him. I had a mean snobby one. Quit her. Then I found a "coach" type doctor, and although he was absolutely opposite of my old GP, I really liked him. A year later HE retired too! A PA took over his patients, and she's really good, but seriously overworked. But for now, she'll do fine.
Good luck in your search for an answer to your hands. Look up the peripheral neuropathy and see if it matches your situation.
Deane Member
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I have a lot of pain because of dystonia. I have Parkinson's and the dystonia is part of that. I try to take something before I go to bed to relieve the pain a little but often it doesn't last the whole night. When I don't get enough sleep the Parkinson's and the Estonia is much worse. I do better if I can have consistency throughout the week but that is almost impossible.
Clair Gardiner Member
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Wishing ou an easy day today.
- Clair ( Team Member)
Annzie Member
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