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Do you experience painsomnia?

Do you live with chronic pain & insomnia (painsomnia)? How do you manage your day-to-day life while dealing with painsomnia? What coping strategies, if any, have you found effective?

  1. My mom has been having a lot more painsomnia than I have. She is scheduled for hip surgery next month. I hope that helps, but it might get worse before it gets better, and she is not confident that fixing the hip will make a difference for her knee and sciatica, or other issues that may need to be addressed separately. She might still need surgery for a knee and a shoulder, and there are probably other things.

    For me it is mostly my hands lately. They usually don't exactly hurt. It's more of an intense tingling. Sometimes to morphs into a burning sensation. I used to say that feel numb, and sometimes they are kind if numb, but it's not like there's no feeling usually. It's more like I don't feel what is really there because the tingling is so strong. It's like my hand are full of very fizzy soda pop, or sometimes almost boiling water. I need to.shirf positions to reduce the neuropathy in my hands. Sometimes a wrist hurts a little, and I am waiting for approval and scheduling for carpal tunnel surgery. However, I'm not sure that's the only cause. I also have spinal stenosis, and I had pain in my neck, back and shoulders before the hands got bad. Sciatica was bad more than a year ago, but that hasn't been as bad lately. Inflammation seems to aggravate all kinds of pain, but I couldn't get my doctor to listen when I tried to talk about that.

    1. That sounds horribly uncomfortable, . Have you ever asked for a referral to a rheumatologist? I ask because that combination of symptoms is common for people with autoimmune arthritis and there are medications that can slow its progression. Keep in mind we are not medical experts though. It's just another path that might be worth persuing. I hope your mother's surgery goes well and that the new hip relieves all her symptoms. Thinking of you both. - Lori (Team Member)

    2. Oh gosh, I relate so well to painsomnia, it is one of my greatest challenges in life. The one thing I acquired That actually helped my pain substantially at night is an eggshell topper, a decent good quality one, that made all the difference to me.

      When I first looked at them, I thought there was no way that this foam is going to make a difference, and boy was I wrong. It was honestly so pivotal for me.

      Have you ever tried something like this? The reason I asked is, that it also alleviated the pinch in my shoulder which was casting my own numbness and pins and needles.

      I hope you have managed sleep

      - Clair ( Team member)

  2. Artvigil 150mg isn't usually used to help people sleep. Instead, it's known to wake people up and keep them from getting sleepy during the day. If you're having trouble sleeping, you should talk to a doctor or nurse right away to find out what other treatments are available that will work for your needs and get to the root of your sleep problems.

    1. Good advice, ! The member who recommended that was a spammer and I have blocked the account. Thanks for chiming in when you did. We appreciate it. - Lori (Team Member)

  3. I have a lot of pain because of dystonia. I have Parkinson's and the dystonia is part of that. I try to take something before I go to bed to relieve the pain a little but often it doesn't last the whole night. When I don't get enough sleep the Parkinson's and the Estonia is much worse. I do better if I can have consistency throughout the week but that is almost impossible.Me

    1. Estonia is a County in Europe.

    2. It looks like such a beautiful place to visit. Goodness.
      Wishing ou an easy day today.

      - Clair ( Team Member)

  4. I have Parkinson's and I have been having a lot of pain for some time now. I have a lot of dystonia which causes a lot of pain. I try to take something something before I go to bed but often it doesn't last through the night and I can't sleep for the pain.

    1. Hi , the pain of dystonia can be so difficult and even more so when your sleep doesn't last through the night. It also sounds like you've been dealing with this for awhile. I wonder what you would think of this article by someone dealing with painsomnia... the writer shares "I am simply in too much pain to sleep. I cannot get comfortable. Sometimes, I fall asleep reasonably fine, but the pain wakes me throughout the night. " - full article here: .

      For you or anyone following the thread, our sister site on Parkinson's has a good article on dystonia and pain: .

      Thank you for sharing, I am sure it makes someone else feel they are not the only one experiencing painsomnia, and I hope for some easier nights for you soon. - Liz (Team Member)

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