Quviviq
Hello all
I've had insomnia since my daughter was killed 18 years ago.
Have been on a horrible journey with nothing seeming to help much.
I've recently seen reports of a new drug, Quviviq , which is non addictive. Does anyone else know of this?
I'm past desperate for any help
I was so exhausted last night and took Quviviq but I could not get to sleep. I ended up taking a diazepam which sent me off almost immediately. I've decided not to continue with Quviviq as it seems to have made my sleep patterns worse! If you read the US reviews it doesn't work for a considerable amount of people. I can't continue with it as I feel I will go mad with even less sleep than normal and feeling really desperate. I may go back to GP and ask for HRT, although last time I tried this - about 10 years ago I started bleeding so had to come off it. Maybe there is a different form of HRT I can try.
In the interim I will go back on low dose amitriptyline and magnesium supplements, not that they were much help but my sleep quantity was better than on Quviviq.
Anyway - Quviviq is out there now and on prescription (at least in Worcestershire).
I wish Quviviq had been effective for you. It sounded so promising, but it is clearly not for everyone. You are doing what is best for you and your health, and that is super important. I am glad you finally got some sleep last night, but I hope a better and more effective solution eventually comes along. Thanks so much for sharing your experience. Warmly, Lori (Team Member)
Hi there,
Having had chronic insomnia for more years than I can remember I have tried everything. The menopause made it worse.
Anyway, I read about this new drug which works in a different way to opioids and anti-depressants (it was signed off by NICE in September 2023). It hasn't been available yet however I went to my GP ten days ago for some more Zopiclone (only take when desperate) and it is now authorised for prescription. There is a stipulation that the patient has to have had CBT - fat chance in my area - two year waiting list and having purchased self help books that route did not work for me. However, the GP still prescribed it and didn't mention CBT.
So, I have been taking it for 10 days. I really thought it would be a wonder drug but I feel worse than ever. It did send me off to sleep promptly but I am still waking for hours with the added delight of now waking at 5am for hours instead of 3am so I am no longer getting a few hours deep sleep from 5 or 6am that I used to get. I also now feel really sleepy during the daytime, worse than before I started taking it!
I've looked at user reviews (in the US) and they are mixed. For some it works, for others it doesn't and makes users feel worse. They do say you have to take it for a month, so I will persevere.Hi
. Are you taking QUVIVIQ (daridorexent)? If so, you would be the first person in this community to report back after using it. I am seeing on the company's website that you should expect results in one to three months. Did your doctor tell you whether the effects you are feeling are normal for this four-week period? Daytime sleepiness is also listed as a potential side effect. If ever you feel unsafe taking it, please contact your doctor. It does work very different from other insomnia medications, blocking the hormones that trigger alertness, so I can imagine it would not be effective for everyone. Would you mind staying in touch and letting us know how you are doing? I hope it begins working well after a month and that you are finally able to get some high quality sleep. Thinking of you and wishing you the best. - Lori (Team Member)
My heart goes out to you for your loss. Truly appalling to have to go through something like that.
I'm interested in whether this medication will work for me too. My issues are anxiety based so I'm not overly convinced. Once it becomes licensed in my part of the World I'm going to ask for it. Having already been through CBT etc. will report back.Hi
. If you do end up trying it, we would love to hear about your experience. I hope you find a solution soon so you can feel healthy and get back to work, if that is what you want. Thinking of you. - Lori (Team Member)
My heart aches for you,
. I can't even begin to imagine what you are going through every single day of your life. Like Clair, I am not super familiar with Quvivq, but, from what I have read, it is really promising for people with chronic insomia. It works by inhibiting the brain's absorbtion of orexin, a chemical that promotes wakefulness. It is new to the market, so there is not much information available on its long-term safety other than the findings from clinical trials. If you do decide to take it, we would definitely like to hear more about how effective it has been for you and whether you have experienced side effects. I hope you get input from people in the community who have tried it here. Sending lots and lots of gentle hugs your way. - Lori (Team Member)
